Thursday, April 25, 2013
Wednesday, April 24, 2013
Tuesday, April 23, 2013
Monday, April 22, 2013
Step Down Unit!
Sitting in the step down unit now with my baby girl! Chest tubes and IV are out! I have so much respect for this little one...she has had to endure so much and she still manages to smile :)
Update Monday Morning
Brielle is doing really well. Chest tubes are coming out later this afternoon, and we should be moving to the step down unit later too!
Saturday, April 20, 2013
Surgery Update
Brielle is doing really well after her surgery. They'll be weaning everything down over the next couple of days. Thanks be to God :)
Thursday, April 18, 2013
Heart Surgery Tomorrow
Well we are all set to go for Brielle's heart surgery tomorrow at 7:30AM! This will be her 3rd heart surgery, and it's an in-between surgery from her Glenn to her Fontan (which she will ultimately have when she is about 3.) I just want to take this opportunity to thank everyone for their outpouring of love and prayers. It really means so much to us!
Friday, April 5, 2013
Update April 5th 2013
I just wanted to give everyone an update on Brielle. I spent all of Wednesday at Children's speaking with the heart surgeon and the neurosurgeon. So far we are still on target for the heart surgery on the 19th. This will remove the shunts that were placed during the last surgery, and replace them with patches instead. The ultimate goal being to open those areas up for better blood flow, so that her oxygen levels go up to where they need to be. Also, to hopefully resolve the issues she was having with the increasing size of the ventricles in her brain.
Which brings me to my conversation with the neurosurgeon... basically Brielle had a stroke at some point around her first surgery (most likely during one of the two cardiac arrests). The blood left over from that, plus the poor circulation in her heart caused the fluid in the spaces of her brain to increase. The good news is, that improved some during the last little procedure they did with the cardiac cath. However, if she still has problems after this next surgery, they will probably have to go in and place a shunt (in her brain) to help drain the fluid better.
So we just really need this next surgery to go well and do what it's supposed to do. All this, while hoping that no complications happen from the surgery itself (and believe me there was quite an extensive list of possible complications.) But I know I serve an awesome God, and I really am thankful for all that He has already done for my sweet little girl. And I'm just going to have faith that He knows what He's doing. Thank you all again for all of the prayers.
Which brings me to my conversation with the neurosurgeon... basically Brielle had a stroke at some point around her first surgery (most likely during one of the two cardiac arrests). The blood left over from that, plus the poor circulation in her heart caused the fluid in the spaces of her brain to increase. The good news is, that improved some during the last little procedure they did with the cardiac cath. However, if she still has problems after this next surgery, they will probably have to go in and place a shunt (in her brain) to help drain the fluid better.
So we just really need this next surgery to go well and do what it's supposed to do. All this, while hoping that no complications happen from the surgery itself (and believe me there was quite an extensive list of possible complications.) But I know I serve an awesome God, and I really am thankful for all that He has already done for my sweet little girl. And I'm just going to have faith that He knows what He's doing. Thank you all again for all of the prayers.
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